April 2015 Update

Well here we are and half of April has already whizzed by. The Amy’s H.O.P.E. 20 team have been pretty busy one way or another.

Butterflies Community Store – Kaleidoscope Project

Amy has now opened her second shop. This one is directly opposite Butterflies Community Store and has a slightly different twist. It is Butterflies Community Store Kaleidoscope Project. There are a number of other local businesses renting space within the shop, including, Totton Rubber Stamp; The Supply Sgt; Wax Scentual; Gifts for Girls; Ciggy Juice; Bridget’s Bling; Beth’s Buttons and Bows and more besides. They are all either renting floor or shelf space.

The pre-loved clothing from Butterflies Community Store has moved across to the new shop, allowing more room for the books; CDs; DVDs; bric-a-brac; toys and general household items in the original shop.

There is now more space for the events taking place in the tearooms which include; Monday – Seasonal Arts and Crafts; Tuesday – Cards and Board Games; Wednesday – Knit, Sew and Natter; Friday – Topic Quiz and Bingo. The tearooms are available to hire on Thursdays, and now that the weather is that much nicer, why not enjoy a cup of something in the delightful garden.

The Grand Opening  took place on Saturday 28th March with Councillor David Harrison doing the honours and officially opening the shop. There were around 20 people present at the opening including Harry Young who sang a few songs from his recently released CD.

The Echo were present and a photograph and write up about the opening appeared in the Southern Daily Echo on Monday 6th April.

Butterflies Grand Opening1Councillor David Harrison

Charity Easter Fayre – Saturday 4th April 2015

As the Christmas Bazaar was so well supported we decided to hold a Charity Easter Fayre, also at Colbury Memorial Hall.  Once again we got our creative heads on a produced another advertising board – complete with Easter bunnies!

Easter Fayre Board

 

As before we had a children’s corner with activities but this time we also had a children’s entertainer, who volunteered their services free of charge. Thank you Kay. This proved really popular with the children and is something we will definitely look into doing again.

We had around 20 stalls, some raising money for various charities, including Myaware – the new name for Myasthenia Gravis Association- Hampshire Branch), Macmillan Cancer Support, Parkinson’s UK, and Prostate Cancer. The kitchen supplied hot dogs, hot cross buns, quiche and salad, tea, coffee etc. and of course there was a well-stocked cake stall!

After all the overheads had been paid the Easter Fayre made a grand total of £470.00, which we were thrilled with as it was more than we made at Christmas. We think these two fayres may become annual events for Amy’s H.O.P.E. 20 and Butterflies.

Before the Fayre was over Amy was able to give two cheques to Jackie Perry for Myaware Hampshire Branch, one for £500 from funds raised at events held last year by Amy’s H.O.P.E. 20, and another for £134 raised by sales from the Webb Ivory Catalogue in the run up to Christmas.  This is something we have done for many years but this year was, by far, the largest sum we’ve ever raised in Christmas sales, and we feel this is due to people being more aware of  Myasthenia Gravis, thanks to Amy’s H.O.P.E. 20.

 

Stanley Graveson Ward, Wessex Neurological Centre, Southampton General Hospital

As regular readers will know, this ward is one of the charities that Amy’s H.O.P.E.20 supports. Amy attends Stanley Graveson Ward as an inpatient every eight weeks to receive Intravenus Immunoglobulin (IV IG), which has proved to be the most effective treatment for her.

Amy’s last stay (9th-11th April) was at the same time as Stanley Graveson Ward was coming to an end. There is being a reconfiguration of the wards, and from now on it will be known as E Neuro. Many of the staff on the ward, some of whom have worked there for over 20 years are being moved to other wards in the hospital. From what Amy said this stay was a very emotional one, not only for the staff, but also for her, as she has been a patient on ward since she was 17 and has often commented that Stanley Graveson Ward is like a second home, as she is known by most of the staff.  They have seen her through teenage years, to becoming a mum, twice, and now follow her new ventures with interest.  She has also got to know and become friends with some of them.  It’s the end of an era.

Amy was able to make one final donation of £200 to Stanley Graveson Ward before it ceases to exist.

 

Abseil – The Orbit, Queen Elizabeth Olympic Park – Sunday 26th April 2015

Now that Amy has been topped up with her magic juice she is all ready for her next big challenge, which is to abseil down the Orbit at Queen Elizabeth Olympic Park. This is the tallest structure in the UK standing at over 350 ft high. The event has been organised by Myaware and Amy is one of the 15 participants undergoing this challenge.

She hasn’t had much time to get nervous about taking part in this event, but now that the shop is open and the Easter Fayre has taken place it’s all become very real and she has Butterflies of another kind to deal with, especially as she is SCARED OF HEIGHTS!

We all wish her the best of luck and will report on how the day goes sometime after 26th April.

If you would like to sponsor Amy the link for he Just Giving page is here.

orbital-abseil-poster-feb-2015
https://www.justgiving.com/Ami-Guy/

Well, that’s all for now. I think you’ll agree April has been fairly eventful – I think the summer may be a bit quieter – but you never know.

March Update – What we’ve got planned!

Well March has got off to a good start for Amy. She took part in The Volunteering Show with Julie Lorraine, a radio programme on Express fm tonight, along with Steve Saunders from Myaware and Myasthenia Gravis nurse, Lisa. Amy spoke about the effect Myasthenia Gravis has had on her life, the treatment she now receives and the fundraising activities that she is involved in. She also mentioned Butterflies Community Store and her plans for the future. If you didn’t get to hear the programme you can listen again at

Express fm photo

Also in March, Butterflies Community Store will be spreading their wings and taking over another shop. Due to the fantastic response the shop has had, and the many donations of goods she receives, Amy has been short on space in the Community Store, unable to display all the items she has for sale. Books and CDs are having to be displayed in the Ten Bob Tea Room, at the rear of the shop, taking up valuable space where the activity events that run on a regular basis are held. These events include Monday 10.30-12.30 Seasonal Arts and Crafts, Tuesday 10.30-12.30 Cards and Board Games, Wednesday 10.30-12.30 Knit, Sew and Natter, Friday 10.30-12.30 Topic Quiz and Bingo. Thursdays are left free for various support groups who hire the tea rooms.

So, when she was offered the opportunity to expand she could hardly refuse. As a result Butterflies have spread their wings and taken over what was Totton Rubber Stamp just across the road from their existing shop. This new venture will be called Butterflies Community Store Kaleidoscope Project. The aim is to incorporate local businesses under one roof. Butterflies Community Store will move their clothing to the new shop and keep the other items in the original shop. Other local businesses will then rent space or shelving from Butterflies. Some businesses already on board are: Totton Rubber Stamp; The Supply Sgt (Army Surplus), Ciggy Juice (e cigerettes) Build a Buddy, Waxscentsual, and more.

Butterflies picture 1Butterflies picture 2

Here are some photos of the Christmas Bazaar held in November, which was a great success. Many people asked if we would be holding another “Table Top Sale” so we decided to hold an Easter Fayre …….

Our friendly Mrs Santa and Elf welcomed people to the Christmas Bazaar

Our friendly Mrs Santa and Elf welcomed people to the Christmas Bazaar

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Events in April
Easter Fayre, Saturday 4 April 11.00 – 2.00. Colbury Memorial Hall, Main Road, Colbury, Hants. There are still a few tables available which can be booked at a cost of £15 each. There will be a variety of goods on offer, including stalls from Macmillan Cancer Research, Slimming World, Organic Bliss, Maggie Curtis will be selling works of art, created by herself, to raise money for the Wing Walk she is doing on 19th April in aid of Parkinson’s UK, there will be plants ready for the spring, cake stall, raffle, tombola, as well as activities for children, plus hot and cold snacks.
Charity Easter Fayre Poster

 

 

Abseil the Orbit – Sunday 26th April 2015

On top of organising the opening of a new shop (Official Opening Day Saturday 28th March), and despite being afraid of heights, Amy is also going to Abseil the Orbit at Queen Elizabeth Olympic Park, London on Sunday 26th April. The orbit stands at 350 ft high and is the UK’s tallest structure. This abseil has been organised by Myaware, the new name for the Myasthenia Gravis Association. Amy has a Just Giving Page where you can make a donation in support of Myaware. https://www.justgiving.com/Ami-Guy/.

orbital-abseil-poster-feb-2015